Cystic Fibrosis: The Ultimate Teen GuideScarecrow Press, 2006 - 259 The day-to-day dealings of life as a cystic fibrosis patient are described through a series of flashbacks to a time when the author was an 18-year-old volunteer at cystic fibrosis overnight camp. From diagnosis to death, this book leaves no aspect of CF untold as it includes a description of the illness; a comprehensive discussion of who gets the disease and why; an explanation of the procedures involved in diagnosing the disease; coverage of the arduous daily therapies involved in maintaining the life of a person with cystic fibrosis; and, now that people who have CF are living longer because of available therapies, the new challenges of dealing with CF-related diabetes as well as making decisions regarding lung transplants are all covered. |
Spis treści
Medical Disclaimer | ix |
Acknowledgments | xi |
Introduction | xiii |
Cystic Fibrosis The Facts | 1 |
A Genetic Disorder | 21 |
A Diagnosis | 35 |
A Daily Challenge | 51 |
Good Days and Bad Days | 87 |
Other Compilations | 125 |
A Second Chance The Lung Transplant | 139 |
In the End | 175 |
Just over the Horizon | 201 |
Afterword | 229 |
The Fabulous List of CF Resources | 231 |
Glossary | 237 |
Living and Laughing | 99 |
Kluczowe wyrazy i wyrażenia
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